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Facts On Dying:
Policy relevant data on care at the end of life
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Background Information to Aid in
Understanding the Study of Care
at the Last Place of Care

The care of seriously ill and dying persons offers important insight into how well our health care system provides competent, coordinated, and compassionate care. Key to the quality of care for seriously ill and dying persons is that medical care be patient-focused and family-centered. A health care institution is providing quality end-of-life care when staff: 1) provide the desired level of physical comfort and emotional support; 2) support shared decision making; 3) treat the individual with respect; 4) provide emotional support to the family; and 5) coordinate care across settings.

Reported in the January 7, 2004 issue of JAMA are concerns of bereaved family members about the quality of care received while their loved ones were dying. Since percentages and rates may not adequately convey the concerns of family members, as part of this study we conducted in-depth interviews with over 100 of the survey participants. In order for their voices to be heard, we provide illustrative quotes from family members about concerns with each aspect of end-of-life care.

Main Outcome Measures

Click on one of the domains below to view information on that aspect of the study.

Additional Information

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Funding provided by
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This web site is published by the Center for Gerontology and Health Care Research at the Brown Medical School. For further information, contact the webmaster via e-mail at factsondying@brown.edu or Dr. Joan Teno at Joan_Teno@brown.edu.